The Sleep Safe® pillow has a micromesh cover and a profiled surface (Thru-Channelling and the AeroMatrix) which allow air to pass between the cover and the surface of the pillow and through the body of the pillow itself. Both parents were very concerned about his safety in case he had a seizure while sleeping. The Sleep-Safe® pillow was designed by a father whose son had epilepsy. Also, keep in mind that in recent years, some of these products have been further perfected, one of them obtained FDA-approval, and so information on some of these products has now been updated. Below you will find all these articles/items organized into this single piece. In the last few years, each of these items has been featured in a brief article in the Safety with epilepsy section. Some inventors were parents or someone with a personal connection with epilepsy, some were researchers, doctors, or engineers. Over the years, the Northeast Regional Epilepsy Group quarterly newsletter identified ingenious and novel devices that were invented by people from across the globe to ensure greater safety for those living with seizures. And that is how it came to be that our December feature article is on how to stay safe/safer when living with epilepsy. These were shared with the group members and then it just seemed like a great idea to share this information with our readers as well. The idea for this article came out of our most recent epilepsy support group meeting when a spouse expressed concern regarding safety and the moderator put together a document with a series of safety items. Seizures can be scary, especially for the family of someone with epilepsy (parents, spouses, children) as well as for the person with epilepsy (PWE) who may not be conscious during his/her seizures but hears about them later. Seizures can be scary-how you can increase safety and security in epilepsy Alerts can be sent to any phone, anywhere, and reports of each event can be accessed for later review with physicians.įor more information on the SmartWatch, visit Article: Seizures can be scary-how you can increase safety and security in epilepsy SmartWatch Inspyre™ users can also summon help with the push of a button. This means that the wearer must have their own cell phone with a data plan paired to the watch to ensure that messages that include the date, time, location, and duration of the event are accurately delivered to the designated individuals. This feature utilizes the watch’s Bluetooth® functionality to connect with the wearer’s smartphone. When the Inspyre detects abnormal motion, it sends a signal to the app running on the user’s device (iPhone or Android phone) to send text and phone call alerts to whomever the SmartWatch Inspyre™ user designates, such as multiple family members and care providers. The SmartWatch Inspyre™ by Smart Monitor is designed to be used on a Samsung or Apple Watch to detect repetitive shaking motion. The following member organizations of Epilepsy Alliance America provide financial support to qualified applicants for the purchase of Seizure Alert and Detection Devices: We encourage you to reach out to the manufacturers of the Seizure Alert and Detection Devices directly, talk with your physician and care team, and make a decision as to the type of technology that best fits the needs of your specific situation. While no device has been proven to prevent seizure-related deaths, technology is available that can lower the risk Epilepsy Alliance America and our member organizations feel strongly that people living with epilepsy or seizure disorders should have information and resources at their disposal to support living well with seizures. Sudden unexpected death in epilepsy (SUDEP) is a concern for many parents whose child with epilepsy has seizures during the night. Please consult your neurologist and other members of your care team to research available devices Seizure alert & detection devices can assist in detecting when a seizure is occurring and will issue an alert to parents, friends, or caregivers. There are over 40 different types of seizures.
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